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The disease is so rare that only 42 people in the world had been diagnosed as of 2015, according to the National Institutes of Health.
NIH says there are no specific therapies to reverse stiff skin syndrome, but treatment may include physical therapy to help with joint movement.
Stiff skin syndrome, according to the NIH, happens when the FBN1 gene mutates. It is inherited trait. A diagnosis is confirmed by genetic testing.
Jaiden's family drives him to Children's Hospital Colorado in Denver, a four-hour trip, every month to meet with doctors who are trying to help the boy. He is also on chemotherapy to slow the disease, all the while taking pain medications, People reported.
The family has set up a GoFundMe account to help pay for Jaiden's treatments and the other expenses that come with the rare disease.